THESE people live with some of the rarest skin conditions in the world. Their skin is meant to protect them, but for these individuals, that hasn’t always been the case. What is it like to live with one of the rarest skin conditions in the world, like Epidermis Bullosa, or Scleroderma, or harder still, a skin condition that remains a mystery to doctors? How do they navigate the world with these rare conditions that are not only medically challenging but also make them look different?
